After watching Dr. Clauw’s lecture (see in post below), I decided to look up some books on pain management and came across this one:
Here are a few excerpts I highlighted so far in the first chapter …
The fact that you may be sad, angry, or anxious about the disruption of your whole life as a result of the pain experience is both understandable and normal.
Accepting ownership of your pain [ …] means acknowledging that you are a worthwhile person, that there is a point in doing something, and that you do have choices.
The fact is that a lot more can be done about the emotional response to chronic pain than about the physical experience.
Changing your awareness changes the pain experience.
I’m not ready to give up. I’m not ready to let my pain control my whole life. I am going to fight. If I can’t fight physically, than I will fight mentally and use every tool I can find. I ordered several other pain management CBT type books, but this is the one I am starting with.
On the pain front:
Very little sitting today. Just brief periods of lying on my bed. I’m uncomfortable, but it’s bearable when I stand. I have lost nearly 15 lbs since this pain started at the beginning of March. This week, I have no appetite. Not sure why. I need to lose weight anyways, so I am not super concerned about it. It could be the prednisone. I am on a round of it for 16 days. So far, no relief that I can tell of for the burning sensation. I start Methotrexate tomorrow night. I am afraid, but the only way around fear is to go straight through it. I also made a gynecology appointment for next week to rule out any lady problems.
Think I will go hug my daughter and husband now.